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Employment Q and A: Assisting Adults with Intellectual Disabilities
and Their Families to Pursue Their Employment Goals

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Alberto Migliore
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Author:
Alberto Migliore
Contact:
LinkedIn Profile
Date:
2009/05/24
Alberto Migliore - Brief Bio
Alberto
Migliore is a Postdoc research fellow at ICI since September 2006.
He assists ICI with research development, data collection, and data
analysis of ongoing research and evaluation projects. Prior to his
experience at ICI, he completed a doctoral program in special
education at Indiana University Bloomington IN; he obtained a Master
in Disability Management from University College Dublin, IRL; and he
graduated from the Department of Political Science at Universita' di
Torino, IT. He also has several years of professional experience in
the public, private, and non-profit sectors. He was one of the
founding members and a member of the executive board of a social
co-operative in Italy where he worked for about 10 years involving
individuals with intellectual disabilities in community work
activities. His last job, before moving from Italy to the USA, was
as officer for the regional government in the area of health and
safety in the workplaces.
Federal and state policies have promoted a shift away from
segregated day programs for people with disabilities towards
employment in integrated settings. According to recent statistics,
however, the majority of adults with intellectual disabilities (ID)
continue to attend facility-based programs such as sheltered
workshops (Braddock et al., 2005; Metzel et al., in press). This
fact sheet explores why adults with disabilities choose to attend
sheltered workshops and how this situation can be changed.
Question: Who participated in this study?
Answer: These findings
are based on responses from 210 adults with ID who attended 19
sheltered workshops in a Midwestern state in 2005; their respective
families or caregivers, called "families" in this fact sheet (N = 185); and the staff members who
worked with these consumer respondents in the workshops (N = 224). Researchers chose the 19
sites, which were geographically representative, with help from
experts knowledgeable about disability programs in that state. Adult
respondents met the following three criteria:
• Intellectual disability
was their primary disability.
• They were the workshops'
most recent clients (placed after January 1, 2000).
• They did not have jobs
outside the workshop.
The 210 adults with ID were almost equally distributed between
women (51%) and men (49%).
Their ages ranged from 18 to 79 years (M = 38.5; SD = 13.5). About 95% were diagnosed
with ID. Of those people, 60% were labeled as having mild ID, 29%
moderate, and 3% severe. None had profound ID. Most of the adults
with disabilities were white (90%). The remaining participants were
either African-American (9%) or Hispanic (1%).
Women comprised a large majority of family members (81%), with
their ages ranging between 22 and 83 (M = 51.4, SD = 13.6, N = 177). Most respondents were parents
(43%); 19% were extended family and 38% professionals who had a
relationship with the person but were not workshop staff.
Most workshop staff members that were surveyed were female (79%).
Their ages ranged from 20 to 71 (M = 39; SD = 11.4; N = 212).
Question: How did researchers collect this information?
Answer: Researchers
interviewed adults with ID. Staff and family completed written
surveys. Questions for all participants focused on the same themes,
phrased to suit the respondent's role. For instance, a question in
the interview read: "Would you like to work outside a workshop?" The
corresponding question to families on the survey read: "Would you
like your son/daughter to work outside a workshop?" Finally, the
same question to staff read: "Do you think that this participant
would like to work outside a workshop?"
Question: Do these
findings apply to other individuals with ID?
Answer: These findings
should not be generalized to a population larger than this sample,
because participants were not randomly selected for the study.
However, this research shows that there are adults with disabilities
currently in sheltered workshops who would prefer employment in the
general labor market, and whose families and staff support that
preference.
Question: What did people with disabilities, families, and staff
say about individuals' employment preferences?
Answer: The majority of the individuals with disabilities and
their caregivers reported that they would prefer employment outside
sheltered workshops. Only
14% of adults with intellectual disabilities and 27% of their family
members stated that they did not want employment outside the workshop.
Staff confirmed this finding: Twenty-nine percent reported that they
believed that adults with ID did not want outside employment.
Sixty-three percent of adults with ID wanted employment outside
sheltered workshops, and 11% thought they might like it. The
remaining 12% did not know or had never thought about the option.
(See Figure 1.)

Question: Did disability severity influence the employment
preferences of adults with intellectual disabilities and their
families?
Answer: This did not
appear to be the case. In fact, the majority of adults with ID
interviewed had mild disability (61%) and 29% had moderate ID, with
only 3% having severe ID and none having profound ID. Moreover,
preferences about types of employment within the group of
participants with severe ID and their families were no different
from the preferences of the remaining participants.
Question: Did adults with ID and their families choose workshops
because they believed that the adults could not perform community
jobs?
Answer: Not necessarily. Only 9% of adults
with ID, 19% of family members, and 17% of staff thought that even
if support were provided, adults with ID would not be able to
perform a community job. (See Figure 2.) To clarify, 37% of adults
with ID believed that they could perform outside sheltered workshops
and 45% of them thought that they could do this with support. The
remaining 9% did not know or had never considered the option.
Figure 2: Belief in the Ability of Adults with ID to Perform
Community Jobs

Question: Given that many adults with ID preferred community
employment and thought they could succeed, why did they attend
sheltered workshops?
Answer: Adults with
disabilities and families expressed a number of concerns that
influenced the choice of sheltered workshops over community
employment. It is noteworthy that most of these mirrored
preoccupations that people without disabilities typically have when
applying for jobs. Over half of the families considered the
following issues important or very important when choosing the type
of employment: transportation to and from the workplace (69%),
long-term placement (66%), safety (69%), convenience of work hours
(59%), retention of disability benefits (57%), work skills
requirements (55%), and friendly social environment (55%).
It should be noted that often these concerns were not based on
actual personal experiences, since adults with ID had seldom
experienced employment outside workshops. In fact, according to the
families, 66% of adults with ID in this study had no paid work
experience (or respondents did not remember), 20% had only one paid
work experience, and only 14% had more than one paid work experience
(N = 183).
Question: Did a particular concern emerge as the most important?
Answer: Twenty-nine
percent of family members considered stable long-term placement the
most important factor, and 23% thought the same of safety issues.
The remaining 47% shared little agreement on the most important
concern that influenced the choice of employment venue (N = 142).
For instance, although 57% of families considered disability
benefits an important
or very important concern, only 3% considered this
concern the most
important. Similarly,
although 69% of the families considered transportation important or
very important, only 4% considered it the most important factor.
According to 29% of staff, the social environment in the
workplace was the most important issue that influenced the choices
of adults with ID. Only 16% and 14% agreed with families that safety
and long-term placement, respectively, were the most important
concerns. The remaining 41% of staff shared little agreement on this
question (N = 167).
Question: What other factors may explain why adults with
disabilities attend sheltered workshops?
Answer: This is a good
question! More can be done to encourage adults with ID and their
families to pursue community employment. A relatively small
percentage of professionals encouraged adults with ID and families
to pursue employment outside sheltered workshops.
Only 31% of families said that case managers did so; the figures
were 29% for vocational rehabilitation counselors and 22% for
sheltered workshop staff. A large percentage of families (40%),
adults with ID (46%), and staff (60%) said that nobody had
encouraged the adult to pursue employment outside the sheltered
workshop, or that they did not know if anybody had. In contrast, 43%
of families said that case managers encouraged families to choose
sheltered workshops, and 28% said the same of vocational
rehabilitation counselors.
Question: In
conclusion, what can we do to better assist adults with intellectual
disabilities to pursue their employment goals?
Answer: The answer to
this question varies by organization type. Sheltered workshop staff
could make sure that people with ID and their families know about
the possibility of pursuing employment goals outside the workshop.
In addition, staff can help individuals and families connect to
employment agencies that can assist with community employment goals.
Note that some workshops are run by organizations that also operate
employment agencies.
Employment agency staff can make sure that individual plans for
employment address survey respondents' major concerns such as
long-term placement, safety, and the social environment in the
workplace.
Finally, case managers, vocational rehabilitation counselors,
residential staff, and other professionals who interact with adults
with ID can encourage them and their families to pursue community
employment. Encouragement is important to make consumers' employment
goals come true.
Resources
Braddock, D., Hemp, R., Rizzolo, M. C., Coulter, D., Haffer, L.,
& Thompson, M. (2005). The state of the states in developmental disabilities 2005.
Boulder, CO: Coleman Institute for Cognitive Disabilities.
Metzel, D. S., Boeltzig, H., Sulewski, S., Butterworth, J., &
Gilmore, D. S. (in press). Achieving community membership through
community rehabilitation provider services: Are we there yet? Mental Retardation.
Migliore, A. (2006). Sheltered workshops and
individual employment: Perspectives of consumers, families, and
staff members. Unpublished
doctoral dissertation, Indiana University, Bloomington.
This study was partially funded by the Indiana Governor’s Council
for People with Disabilities and carried out as part of the author's
doctorate from Indiana University, Division of Special Education.
The Indiana Institute on Disability and Community provided support
with travel and logistics. Dr. Migliore is currently a Postdoctoral
Fellow at the Institute for Community Inclusion, University of
Massachusetts Boston.
The opinions expressed herein do not necessarily reflect the
position or policy of the U.S. Department of Labor. Nor does mention
of trade names, commercial products, or organizations imply the
endorsement by the U.S. Department of Labor.
"This fact sheet was developed by T-TAP, funded by a cooperative
agreement from the U.S. Department of Labor, Office of Disability
Employment Policy (Number E 9-4-2-01217). The opinions expressed
herein do not necessarily reflect the position or policy of the U.S.
Department of Labor. Nor does mention of trade names, commercial
products, or organizations imply the endorsement by the U.S.
Department of Labor."
Select outside publications by Alberto Migliore
Migliore, A., Mank, D., Grossi, T., & Rogan, P. (2007).
Integrated employment or sheltered workshops: Preferences of adults
with intellectual disabilities, their families, and staff. Journal
of Vocational Rehabilitation, 26(1).
Migliore, A. (2003). Guida alla formazione in situazione per i
disabili intellettivi. Uno strumento di accesso al lavoro: Supported
employment Americano e buone pratiche Europee [Place-then-train
guide for people with intellectual disabilities: A tool for
employment: American supported employment and European good
practices]. Pisa, IT: Edizioni Del Cerro.
Migliore, A. (2001). Models of good practice in assisting people
with learning difficulties to gain competitive employment. The
Annals of the Marie Curie Fellowship, 1, 151-157.
VR Rehabilitation Rates of People with Mental
Retardation/Developmental Disabilities (MR/DD) in 2005
`` Models of good Practice in Assisting People with learning
Difficulties to Gain Employment'',
A. Migliore
LinkedIn: Alberto Migliore's professional profile on LinkedIn
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